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Frameworks of ChoicePredictive and Genetic Testing in Asia (IIAS Publications series)
Format: Paperback
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Dit is een unieke studie over het maken van beleid voor gentherapie, gebaseerd op empirisch veldwerk in China, Japan, India en Sri Lanka.
'Frameworks of Choice' verkent de culturele en politieke aspecten van voorspellende en genetische tests. Het boek analyseert de sociale, culturele, en economische gevolgen voor het individu na een voorspellende of genetische screening. Margaret Sleeboom-Faulkner geeft een genuanceerd beeld van de belangen van verschillende sociaal-economische en politieke groepringen, waaronder overheden, etnische groepen, vrouwen, patiëntenverenigingen, verzekeraars, de farmaceutische industrie en wetenschappers in het veld van voorspellende geneeskunde. De auteur gebruikt methoden en perspectieven vanuit de sociale antropologie, sociologie, recht, politiek, en bio-ethiek om verbanden te leggen tussen voorspellende genetische tests en gevoelige kwesties zoals armoede, discriminatie, biomedische uitbuiting, de verdeling van middelen in de gezondheidszorg, en nationalisme.
De bevindingen in 'Frameworks of Choice' kunnen gebruikt worden om nieuwe juridische kaders voor regelgeving vorm te geven. Bovendien biedt dit boek inzichten hoe om te gaan met bio-ethische kwesties die voortvloeien uit genetische tests, zoals het recht om niet te weten', informed consent (instemmen met tests op grond van gedegen voorlichting), privacy en geheimhoudingsplicht.
margaret sleeboom-faulkner is docent Sociale Antropologie aan de Universiteit van Sussex.
Format: Paperback
Published: 2010
Pages: 271
Publisher: Amsterdam University Press
ISBN: 9789089641656
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Condition Descriptions
Our conditions mean the following:
- New - a brand new book
- Almost New - appears new but is actually secondhand.
- Very Good - only minor imperfections such as minor scuffs to edge or cover or a price written in pencil or shop sticker.
- Standard Secondhand - Clearly been read before, but not too bad. We do not recommend these for gifting. Spines usually creased. Could also include creases or folds to cover, some writing such as in the cover or elsewhere, underlining or highlighting, but might not do. Possibly some stains or marks. Similar in general to books in any secondhand shop or charity shop.
- Poor Condition - Usually this will have a specific problem such as writing inside, water damage, missing dust jacket, heavy staining, large creases or cuts. These are readable copies but not nice ones. On other websites this condition is called 'Acceptable' or 'Fair' , but we want to be more honest.
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